Thursday, September 17, 2015

Why I am not going to the Narcolepsy Network Conference

Not because almost everything I've ever been told there is either irrelevant or downright inaccurate-
But because every time I do, my symptoms get worse.

And that's because Narcolepsy is contagious.
It is caused by upper airway bacterial infection and big groups of people in closed quarters increase the likelihood of disease transmission.

And since NN really doesn't want to admit that, they don't do anything to prevent it.
Hell, they seem to go out of their way to choose the least appropriate locations.
Vegas was a hot, arid sensory nightmare, Cleveland was cold and rainy, (I missed Atlanta), the altitude in Denver caused respiratory distress, and now Minneapolis is the ground zero of winter infectious illnesses.
Like flu.   Which triggers strep.  And Strep Causes Narcolepsy.

Not to mention most of the food contains gluten or sugar which makes our symptoms worse.
And even if it doesn't, it is served buffet style, and all your fellow sickos are breathing on it.  Mmmmmm,   narcolepsy on a plate.

I don't think they know enough about Narcolepsy to actually make us worse intentionally...
But that is because they are willfully ignoring the research.
The real goal of the organization and their conference is to get you a diagnosis so the doctors and pharmas can make money off you for the rest of your life.  
So if they admit that narcolepsy is caused by oropharyngeal  infection, they are instantly out of business...